Monday, April 29, 2013

What Every Woman With Severe Morning Sickness Wants You to Know

No, I'm not pregnant.  Ha.  If you've read my blog for a while, then you know I've spent a good portion of the past 5 years of my life pregnant.  But at the moment, I happen to not be pregnant.

I am, however, running in the HER Foundation 5K in a couple of weeks as a virtual runner.  My fees will go to help fund research for hyperemesis gravidarum, a very severe form of morning sickness.


I recently read a blog post touting a "cure" for morning sickness that infuriated me for the lack of compassion the author had for moms with bad cases of morning sickness.  Like so many other articles about morning sickness, it was just another reminder of how few women understand what it's like to have severe morning sickness, or hyperemesis gravidarum.  I remember feeling this way when Kate Middleton was hospitalized with HG.  I saw many women on Facebook saying "What's the big deal?  It's just morning sickness, so get over it!  All pregnant women go through it!"

In some ways, it's like a club that you enter when you become pregnant.  Every woman who has ever been pregnant will tell you that either she's never had morning sickness or that she felt nauseous, terrible, and awful for that first yucky trimester.  And because normal morning sickness does indeed feel horrible and awful, most women have a hard time imagining that anyone could possibly have it worse.

But some do have it worse.

I remind myself of that all the time.  I have very severe morning sickness that never goes away the entire 9 months.  At my best, I will only throw up once or twice a week.  But at my worst, I'm throwing up 3-5 times a day.  I've even thrown up 5 times in 2 hours.  It's that bad.

And I remind myself that some women have it worse.

So join me in suspending your unbelief for a minute. Say it with  me now:  Some women have it worse.  




Several of us who do indeed have it worse wrote this blog post together.  I asked other women who have severe, debilitating morning sickness what they would want their friends to know.  This is what they said.  This is what we said.

What we want our friends to know about severe morning sickness:

1.  We're not doing it for attention.  Trust me, I'd rather get attention for lots of other things, like just being a happy, healthy pregnant lady.  There's enough belly rubbing, asking about your due date, and discussions of baby plans to make a pregnant woman have plenty of attention.  We don't exaggerate our morning sickness woes to make anyone feel sorry for us.

And not all of us are hospitalized with HG.  Only the most severe cases require IVs.  I generally have enough good days in between my bad days that enable me to rehydrate.  There have, however, been a couple of times when I should've gone in for fluids, but to be honest, I couldn't think clearly enough to make that choice, so I opted to spend time in bed, sipping bottled water on my end table.

2.  It doesn't feel better to vomit.  Honestly, this is one of the most hurtful things a person can tell me because it completely nullifies my suffering.  I hear women say that they would love to vomit so that the nausea would finally end.  But it doesn't, at least it doesn't for many of us.  Once I vomit, not only am I still nauseous, but I'm also exhausted from the retching, I have broken capillaries on my face, and I need to lay down immediately.  The further along I am in pregnancy, the more it exhausts me to get sick.

To say it feels better to vomit completely discounts how rough it is on the body to vomit so much.  I've had fillings in my teeth that only lasted a few years instead of a decade, most likely because of the damage done from vomiting so much.  Saying that it feels better to vomit only makes a woman with severe morning sickness want to curl up in her bed and cry.

3.  We feel useless and alone.  We're not any good at fulfilling our roles in life.  I can't be the wife, mother, friend, and daughter I would love to be.  I'm even later than usual because no one plans on vomiting three times before church in the morning.  I do leave margin in my schedule for getting sick or resting when nauseous, but some days are rougher than others.  Making it to the grocery store feels impossible.  Making it out of the grocery store feels even more impossible sometimes.  I've called my husband from the back of Walmart, in tears, because I don't think it's possible to walk to the front.  I'm spent from too much vomiting and pregnancy exhaustion.  No one gets it, which is obvious because of the hurtful comments made by others.

4.  We've already tried ______.  Fill in the blank:  Crackers, sprite, eating before getting out of bed, sea bands, ginger ale, ginger tea, ginger snaps, ginger supplements, peppermint, protein, carbs, snacking constantly, zofran, phenergen, reglan, B6 Unisom, the BRAT diet, drinking lots of water, not drinking water during meals, keeping cool, wearing loose clothing, laying down in a dark quiet room.  You name it, we've tried it.  We have Google too, and you can believe we've Googled this issue to death.  Any comment like this, even though it's meant to be helpful, implies that we just haven't tried hard enough.  I remember my husband coming home from work one day saying "Have you ever heard of hyperemesis?  I think you have it."  That's where our Googling left us.  Nothing worked, nothing cured it.  Many things alleviated symptoms a bit, but try as I may, I would still vomit.  At work, at church, in a cup in the car, in the front yard, in the kitchen sink, and in way too many parking lots.  Instead of looking for the magic cure, I've turned my attention to coping.

5.  We may not talk about it much, so know that we vomit way more often than you'll ever know.  I love to talk about anything else in pregnancy besides vomiting.  A lot of times, I feel sick just talking about it, but other times, I just want to be positive.  And then there are times when I can tell that the another woman just doesn't get it.  She thinks I'm dealing with "normal" morning sickness.  So I steer the conversation in a different direction.  I really don't even talk about it much with my doctor during pregnancy.  He knows I throw up and he sees the numbers on the scale that stay the same for months at a time, and he's tried every safe prescription possible to keep me from vomiting, so there's nothing else he can do.

It gets old discussing it, and as I said before, I don't want attention for this issue.  I've decided to blog about it for the same reason I blog about everything else:  to encourage, inform, and edify other women.  You may be someone who needs to know that others go through it too, or you may be the friend that another woman needs as she's struggling.

6.  We know we're blessed to have a baby.  Truly, we do, and we remind ourselves of this all the time.  We never resent the baby, just the fact that our bodies don't respond to pregnancy the way that other women's bodies do.

7.  Help a mama out.  Want to help?  Clean house with us.  Offer to watch our kids so we can rest, take a nap, or catch up on the house work.  Invite us to dinner, since it's far easier to eat a meal that we didn't have to smell and cook beforehand.  Bring us a meal when we're pregnant, not just when we've had a baby.  Everyone else we know complains about the newborn stage of babies and how hard it is, but my husband and I feel that pregnancy is always far worse than juggling children and sleepless nights.  For us, nothing is harder than pregnancy.  Nothing.

8.  Encourage, sympathize, and have compassion with your words.  Saying "Every woman has to go through this," "It will pass," or telling me that you're sorry I feel so nauseous will only make me feel more alone.  Nausea is rough on pregnant women.  I get that and I don't discount that, but I have nausea and steady vomiting for 9 months.  There's a huge difference.    

Statistically, about 3% of women have severe morning sickness or hyperemesis.

Then there's the 7% of women who understand and sympathize with those women.

And then there's everyone else.  90%.  At least that's how it feels.  Sometimes, it feels like no one understands.

Make some extra effort.  Be the 7%.  These are the friends who bring dinner, who say they can't imagine how hard life is for us when I'm pregnant, or who tell me, as one friend did, that she probably wouldn't have had 5 children if she vomited like I do.  Be the friend who gets it.

How is morning sickness for you when you're pregnant?  I'll celebrate with you, and not resent you, if you say it's a breeze, but I'll sympathize if you've got it rough too.  If you've got rough morning sickness, what would you want your friends to know?

Wondering if you have HG?  Check out this link.

Have a friend with HG?  The HER Foundation has a great FAQ list. If you enjoyed this post, you can follow on Facebook and sign up to receive MamaGab in your inbox.
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16 comments:

  1. I had horrible morning sickness with my first through the whole pregnancy. No one understood, except my sister who had, had it just as badly. I was throwing up every day multiple times a day if not an hour. I laughed at your google comment cause yes, Nothing worked and I tried everything, EVERYTHING... even prescriptions. It was awful! I didn't gain normal pregnancy weight and my son was early, and only 5lbs 5oz. He is thankfully a thriving 2 year old now.

    My 2nd baby, a little woozy the first trimester, yes some up close and personal time with the porcelain beast, then nothing. I was very tired, but so much easier its almost not even comparable.

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    1. I think the worst part was, as you mentioned, that no one understands. Even other women who think they understand often don't (they speak of miserable nausea only). I'm so glad your second pregnancy was better. My first was bad, my second a little better, and my third was probably my worst, though having 2 kids ages 3 and under probably added to that!

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  2. im only 9 weeks have been sick since 5 like you tried everything and not sure how im going to keep it up :( reading this has helped thankyou

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    1. You're so welcome, but I'm sorry you've been so sick. It really is miserable.

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  3. I've never commented on anything on the web before- Until now. This small post has lifted me. Thank you for writing it. I am 10 weeks pregnant and have been House bound since week 5. It's been so hard and it's been harder still to deal with people who just say 'have you tried...?' or 'it'll pass'. Pass? It's been the longest 5 weeks of my life. Every day becomes a battle to eat. And I spend hours gagging and with my head in a bucket. Thank you for making me feel like I am not exaggerating. Or alone in feeling the way I do.

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    1. I am so sorry that you have to go through all of that. It feels impossible some days. But no, you're not alone. :)

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  4. Thank you for sharing these tips! I have a friend who is so sick all 9 months and she just had her 4th child! I was so amazed and didn't know how she did it with throwing up as she said - up to 10 times a day while taking care of the other kids. I am pregnant with my second and was sick for the first 16 weeks, but not as even as close to as bad as what you are describing. I did pop all the blood vessels in my face at one point. It has never happened to me before so I was shocked when I saw myself in the mirror! lol Anyways will share on Pinterest.

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    1. It's so hard--kudos to your friend for not letting it discourage her. We definitely want a fourth baby, but the primary deterrent for us is morning sickness. We just don't want our lives put on hold (again) for nine months. So we're waiting until our littles are a big older and not so needy before letting more babies come, if that's God's plan. Thanks for sharing.

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    2. Totally understandable! I have a lot of other health issues, and had to be cleared by 4 doctors to get pregnant with this one (baby 2#) so I understand wanting to wait and see what's best for the family. Prayers and blessings!

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  5. I am currently 15 weeks pregnant with #3 and I have HG. Your post made me cry. I try every day to look forward and up, but pregnancy for me is so discouraging. I tell myself over and over there is a gift of a baby at the end of this road. In fact I had a lady from church call today. She commented, "I didn't even know you are pregnant" I replied, "I pretend I am not, so I can make it though the day and not complain so much". I tend to withdraw as my way of coping.

    I do have to count my blessings!! My first pregnancy was by far the worst of the three (requiring multiple IV's). I have found a few ways to manipulate my body enough to survive and not feel like I am dying each day.

    Thank you for posting this. I will be pinning and if you are okay with it, I would like to share it on my blog: tales of domestica

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    1. I'm so glad I'm not the only one, though I'm sorry you have it so rough. :( I really do hope it gets better for you soon. Yes, I'd love for you to share.

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  6. My first ... awful. I was 19 and naive and didn't know I could ask for Zofran or Phenergan, but I probably needed it. I was throwing up several times a day for 16 weeks straight. I didn't have other small children at home but I was in the middle of college and also working part-time. I missed so much school and work ... thank goodness for understanding professors and bosses!

    With my second, I mostly had bad headaches but only threw up maybe 10 times and the nausea didn't even start until I was 8 weeks. It felt like heaven in comparison.

    Now I am on #3 and as if on cue, the throwing up started right at week 6. I have only thrown up once this week but I am extremely dizzy and feel that terrible lump of almost-puke in the back of my throat day and night. I tried taking Dramamine and it made me dizzier and didn't really help with the nausea. It is so depressing but I'm counting my blessings that it isn't as bad as #1. Yet, at least.

    And I agree with your sentiment that someone else has it worse -- my good friend was on IV's her entire pregnancies -- yes, she has had 3 children! She just delivered her third a few months ago so her stories are fresh in my mind. It helps me keep a positive perspective.

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  7. Oh, I forgot -- my sister-in-law just the other day said, "Well, at least you get to puke so you can get some relief. I just had bad nausea." I chose to laugh instead of cry. Because, as you said, there is NO relief from vomiting when you are pregnant!

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  8. I am pregnant with my second child and I have the same condition as you, I tried everything and nothing really works, my first pregnancy was the same too, I am 9 weeks pregnant and I can't keep anything down, my family tell me that I have to man up and keep eating after everytime I vomite, still seven months to go in that condition, wish me luck please, I really need it

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  9. This is a brother’s account of hyperemesis gravidarum, a condition I never realised existed, until my sister, whom I love very much, suffered and is still suffering. My sister is a very intelligent, beautiful person. The illness is debilitating physically and mentally in ways I can’t imagine. These are excerpts of a few of the thoughts she has shared messaging with me. I wish I knew what to do.

    “This is a relentless, never ending living hell which destroys every last inch of you to the point you no longer have any desire to live and will do anything to get respite from this ordeal no matter how drastic it may seem.

    Life is no longer worth living and if you see something wrong with this, it means two things: you either don't get it or you've been spared this torture and will never understand.

    If I knew why that would be small comfort.

    Self-harm. Ironic considering this ordeal is harmful to myself.

    My normal self died weeks ago. When you're hopeless you want explanations
    Having kids is not the be all and end all. No point having kids if you are so messed up from the process. Messed up is an understatement for me. I'd like to come out of this just messed up.

    It wears you down to the point you want it all to end.

    I'm strong you say. So I'd just do it myself. Self harm. No need to involve others.

    I say it to you because I can be honest and irrational. If not with you, who?

    I’d do anything to be out and about. to work,to go somewhere.
    It would be easier to have not dragged you.

    Everything is bad with me right now. Nothing helps. No one can. Only I can help myself.

    I can't remember feeling like the old me. She's dead for sure. I wish one thing only, for it to end. Interpret what you want when I say 'it'.

    You must not wake up every morning and wish you hadn't and when you throw up, how you want a gun to your head. Every waking minute in between you fantasise how u can end it.

    I think I'm in a hopeless situation and I feel like if I could end it I would. That's what I think and feel

    Slept terribly even with the tablet. Didn't think it possible but I still woke up every few minutes it seemed. I don't know what to do except take a double dose which I'm reluctant.

    I will need to force myself to get up of bed for food etc. I’m not motivated at all. I guess time will tell if I bother.

    Yes. Nothing helps. And I'm sick of people saying it will all be over soon. How the f*** would they know. Unless they are going to end things for me.

    Will this food be hell to throw this back up? Will I regret it? Is that pressure bloated feeling going to pass or is it rising upwards? Is the nausea going to intensify? Is the bucket in close enough proximity? Will the next sip of water be the one that makes me vomit it all up?
    You want to drink because you're thirsty. But things are so uncomfortably full and nauseous that there's no room. You know you should take vitamins. But the mere thought makes you gag. One wrong unrelated cough and it all comes up. All the hard work in trying to get food in.”

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  10. Thanks for this - I didn't have HG, but I definitely had what I considered severe morning sickness (some days throwing up 4-5+ times). Luckily in Canada we have Diclectin, which was my lifesaver. I went on it at 8 weeks and didn't come off until the day my daughter was born (most women only need it for the first trimester). Your points are right on - the fact that it DOESN'T feel better to vomit...often I found that if I threw up once it started what felt like a domino effect to throwing up multiple times - I felt like if I could only prevent the first one I'd be ok...once I started there was no stopping! Also, it was endlessly frustrating to have people offer suggestions - like you say, I tried EVERYTHING and until I went on medication, nothing helped (and most suggestions made things worse!) and you're absolutely right - it implies that we're not trying hard enough.
    I often felt guilty for feeling so miserable and disliking being pregnant as much as I did...I wanted to be pregnant so badly, I felt like I had to hide how rough I was feeling and tell everyone that everything was great, even though that was the furthest thing from the truth.
    Thanks for talking about this...I hope I don't have to go through severe sickness again, but if I do, I'll be sure to come back here for encouragement. Thanks.

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